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About Rare Connection
Welcome to Rare Connection, where we educate medical professionals on all 10,000 rare diseases. A rare condition as defined in the US is one that less than 200,000 people have. We also connect rare disease patients vial email, and our Facebook Group https://www.facebook.com/groups/3802022513417876
Lastly we try to find clinical trials for the 95% of rare conditions that lack FDA approved treatment.
Changing the Narrative for Rare Diseases
At Rare Connection, we address the profound challenges faced by individuals with rare diseases—conditions affecting fewer than 200,000 people each. With over 10,000 rare diseases and 95% lacking FDA-approved treatments, many patients experience isolation and mental health struggles. Our mission is to connect, support, and educate both patients and medical professionals to improve diagnosis and treatment options. We strive to uncover clinical trials and encourage the formation of patient support groups, all while working to bridge gaps in medical knowledge.
- Connecting Patients and Support
- Educating and Raising Awareness:
- Empowering Community Action
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Collabs
We’ve collaborated with patients and doctors. These partnerships help us provide a comprehensive view of managing rare diseases.
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Videos
Our extensive library boasts over 800 videos, offering valuable information and engaging content on rare diseases.
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Views
Our videos resonate widely and underscore the impact of our mission and continuing to support those affected by rare diseases.
Get in Touch
Have questions or need support? We’re here to help!. Your feedback and communication are vital to our mission, and we look forward to hearing from you.