Podcasts - Rare Connection

Voices Behind Rare Diseases

Join us as we explore the world of rare diseases through compelling podcasts. Each episode features conversations with patients, researchers, and advocates who are on the front lines of these medical mysteries.

Episode: Hypohidrotic Ectodermal Dysplasia With Rebekah From Oregon

Episode: Hypohydrotic Ectodermal Dysplasia From Oregon

Episode: Methylene Tetrahydro Folate Reductase (MTHFR)

Episode: Menkes Syndrome with Daniel from New York

Episode: Pura Syndrome With Melissa from Washington

Episode: High Functioning Autism (Aspburger’s Syndrome) With Kadin From Ohio (MTHFR)

Episode: Rare Connection Episode 12: High Functioning Autism with Kadin from Ohio

Episode: Acoustic Neuroma with Shari from CA

Episode: How AI Can Aide in the Diagnosis of Rare Diseases